Deb has been raising money for the Relay For Life campaign. One of the fund raising activities that her school has put together is a bowl-athon. Fortunately I had enough energy to roll a frame with the kids.
No ifs, ands, or ...
Landon has mad ninja skills...
Friday, April 25, 2008
Friday, April 18, 2008
More Positive News
I had my second follow-up CT scan on 10-Apr, which followed my 4th chemo infusion by 2 weeks. The CT scans are the primary method of determining how effective the treatments are against the cancer. The interval of the CT scans is 6 weeks, which seems like a long time (even if you aren't the cancer patient). Deb and I also had to wait out another week before we met with my oncologist again. As you can imagine, anxiety sets in as you wait, because you don't know what to expect. I kept running the various scenarios through my head...
1) Will the chemo be effective and I continue on the same treatment path? OR
2) Will a complete miracle occur and there be No Evidence of Disease (NED is what cancer patients long to hear from their oncologist)? OR
3) Will my cancer continue to grow and take us back to square one?
Morgan and Landon had a great idea for us to take our minds off of such things. Let's go fly our kites in the park!



Our kids have wisdom way beyond their years.
We met with my oncologist this morning after my blood was analyzed by the lab. I have been fortunate to have a very large vein in my arm stay intact during my chemo treatments. The lovely nurses who draw blood from me every week grin ear to ear at the thought of how easy the blood draw will be, like driving on the interstate with 4 lanes open all to yourself.
I told my oncologist that I felt like I was improving physically (excluding the 5 days of side-effects after chemo treatments). Wonderfully, he shared that the CT scans seem to agree with my overall feeling of health. The mass in my left lung has decreased significantly again to the point were it is somewhat difficult to see on the CT images. The tumors in my liver have stabilized since my last CT scan.
My doctor noted that he has seen cases in the past for non-active tumors remaining on CT scans for up to 1 year, since it can take the body that long to reject the dead cells. To get a better idea of the level of tumor activity, he recommended getting a PET scan, which is non-invasive test that can detect the level of cancer cell activity. If the CT scan will tell you size of a light bulb, the PET scan will also tell you whether or not it is burned out. My PET scan is scheduled for next week (24-Apr).
I was supposed to have a chemo treatment today (#5), but since my platelets were low I rescheduled for next Friday (25-Apr). Hopefully the results of the PET scan will be available to review with my oncologist next week and we can get a better sense of what the CT results mean. If the tumor appears to be dead, I might get a reprieve from the chemo treatments for a while.
We appreciate all of the prayer support we have been getting from family and friends alike. We are praying bold prayers like many of you and God has answered those prayers today. Praise GOD! Please continue to keep us in your prayers, for encouraging results from the PET scan, minimized side-effects of the chemo treatments, reducing anxiety for both myself and Deb, and protection for our entire family from getting sick.
1) Will the chemo be effective and I continue on the same treatment path? OR
2) Will a complete miracle occur and there be No Evidence of Disease (NED is what cancer patients long to hear from their oncologist)? OR
3) Will my cancer continue to grow and take us back to square one?
Morgan and Landon had a great idea for us to take our minds off of such things. Let's go fly our kites in the park!
Our kids have wisdom way beyond their years.
We met with my oncologist this morning after my blood was analyzed by the lab. I have been fortunate to have a very large vein in my arm stay intact during my chemo treatments. The lovely nurses who draw blood from me every week grin ear to ear at the thought of how easy the blood draw will be, like driving on the interstate with 4 lanes open all to yourself.
I told my oncologist that I felt like I was improving physically (excluding the 5 days of side-effects after chemo treatments). Wonderfully, he shared that the CT scans seem to agree with my overall feeling of health. The mass in my left lung has decreased significantly again to the point were it is somewhat difficult to see on the CT images. The tumors in my liver have stabilized since my last CT scan.
My doctor noted that he has seen cases in the past for non-active tumors remaining on CT scans for up to 1 year, since it can take the body that long to reject the dead cells. To get a better idea of the level of tumor activity, he recommended getting a PET scan, which is non-invasive test that can detect the level of cancer cell activity. If the CT scan will tell you size of a light bulb, the PET scan will also tell you whether or not it is burned out. My PET scan is scheduled for next week (24-Apr).
I was supposed to have a chemo treatment today (#5), but since my platelets were low I rescheduled for next Friday (25-Apr). Hopefully the results of the PET scan will be available to review with my oncologist next week and we can get a better sense of what the CT results mean. If the tumor appears to be dead, I might get a reprieve from the chemo treatments for a while.
We appreciate all of the prayer support we have been getting from family and friends alike. We are praying bold prayers like many of you and God has answered those prayers today. Praise GOD! Please continue to keep us in your prayers, for encouraging results from the PET scan, minimized side-effects of the chemo treatments, reducing anxiety for both myself and Deb, and protection for our entire family from getting sick.
Sunday, April 6, 2008
Relay For Life
Dear Family and Friends,
I've decided to take action against cancer by participating in our local American Cancer Society Relay For Life event on May 17-18, 2008 from 10:00 a.m. - 10:00 a.m. Relay For Life is about celebration, remembrance, and hope. By participating, I am honoring cancer survivors, paying tribute to the lives we've lost to the disease, and raising money to help fight it. Many people have asked what they can do for our family during this time and there just isn't much besides prayer that can be done. This is something we can all do together.
Please help support me in this important cause by making a donation. It is faster and easier than ever to support me by making a secure, tax-deductible donation online using the link below. If you would prefer, you can send your contribution to the mailing address listed below.
Whatever you can give will help - it all adds up! I greatly appreciate your support.
Sincerely,
Deb
To make a donation online, visit my personal page.
To print an offline donation form, click here.
If you choose to make an offline donation, please be sure to notify the Relay For Life participant that you are making a contribution on their behalf. Please make checks out the American Cancer Society and send the complete form with contribution to the local American Cancer Society office at:
American Cancer Society
20450 Civic Center Drive
Southfield, MI 48076
I've decided to take action against cancer by participating in our local American Cancer Society Relay For Life event on May 17-18, 2008 from 10:00 a.m. - 10:00 a.m. Relay For Life is about celebration, remembrance, and hope. By participating, I am honoring cancer survivors, paying tribute to the lives we've lost to the disease, and raising money to help fight it. Many people have asked what they can do for our family during this time and there just isn't much besides prayer that can be done. This is something we can all do together.
Please help support me in this important cause by making a donation. It is faster and easier than ever to support me by making a secure, tax-deductible donation online using the link below. If you would prefer, you can send your contribution to the mailing address listed below.
Whatever you can give will help - it all adds up! I greatly appreciate your support.
Sincerely,
Deb
To make a donation online, visit my personal page.
To print an offline donation form, click here.
If you choose to make an offline donation, please be sure to notify the Relay For Life participant that you are making a contribution on their behalf. Please make checks out the American Cancer Society and send the complete form with contribution to the local American Cancer Society office at:
American Cancer Society
20450 Civic Center Drive
Southfield, MI 48076
Monday, March 24, 2008
Easter Weekend
Chemo treatment #4 was scheduled to occur on 21-Mar (Good Friday) depending on the outcome of my blood work. My Neutrophil (specific type of white blood cell) count has to be at least 1.5 to administer a chemo infusion (based on the specific protocol of my treatment). My previous treatment, originally scheduled on 22-Feb, had to be delayed by a week since my Neutrophil count was 1.2. To be honest, I was hoping that my Neutrophil count would be under the 1.5 threshold since my family was gathering together for easter at my parents house in Port Huron. I was happy when informed that my Neutrolphil count was 1.4, delaying treatment until 28-Mar.
Deb, the twins, and I went up to Port Huron on Saturday morning. Meg, Em, and Steve also came up for the weekend. We had a relaxing time together as a family. Here we are after the Easter Sunday service.

Side effects are fairly mild by the time I reach 3 weeks from treatment. As you can see, my eyebrows are nearly gone now. Overall, this weekend was the best since I was diagnosed, in terms of energy and spirit. Treatment #4 looms around the corner...
Deb, the twins, and I went up to Port Huron on Saturday morning. Meg, Em, and Steve also came up for the weekend. We had a relaxing time together as a family. Here we are after the Easter Sunday service.
Side effects are fairly mild by the time I reach 3 weeks from treatment. As you can see, my eyebrows are nearly gone now. Overall, this weekend was the best since I was diagnosed, in terms of energy and spirit. Treatment #4 looms around the corner...
Saturday, February 23, 2008
Follow up CT scan
My experience during the second round of chemo treatment was similar to the first. The day of and after the treatment I felt fine, but the following 5 days were uncomfortable. During this time I get fatigued easily and experience general aches and pains. Thus far my appetite has been great, but this round of chemo was difficult on my digestive system. After some research, I found certain nutritional plans are much easier (and healthier) for the body to process.

I have adjusted my diet drastically before. Just after the twins were born I was my heaviest, 265lb on my 6'6" frame.

At that time I decided that I didn't want my kids to see me as an overweight father. I cut my caloric input by 1/2 and did weight training exercises 3 times a week. I lost 40lbs in about 6 months.
I have kept the weight off by eating less than I used to, but I haven't utilized the healthiest diet. I tend to eat lots of processed foods, red meats, and refined sugars. I switched to diet soda when I originally lost my weight which helped reduce my caloric intake, but it's certainly not the healthiest way to hydrate.
For the last 2 weeks, I have switched to a vegetable focussed nutrition plan that has a moderate amount of lean white meat (to get me the appropriate amount of protein). This nutrition plan provides loads of nutrients, vitamins, and enzymes that my body can process much more easily. I don't know if this diet will help my fight against cancer, but it certainly can't hurt eating a diet full of foods that are natural provided for us (Genesis 1:29). In addition, I drink about 100 oz of water a day.
Deb and I went to Karmanos yesterday for my 3rd scheduled chemo treatment. We first met with Dr. Flaherty to discuss the follow up CT scan taken the week before. The oncology field uses results from the CT scan in conjunction with other indicators such as blood work (each of the 100+ cancers is different, but for liver melanoma one blood indicator is LDH, an enzyme that can indicate liver disease). A normal LDH level is 250. At my first consult my LDH was 800. By my second treatment it had fallen to 300. On Friday the LDH was just under 200. We took this as encouraging news.
The CT scans were a mixed story. The mass in my left lung (not known if it is cancerous) has decreased in size by 60%. There is also no evidence of fluid in my lung. The liver CT scan was a different story. The new images looked significantly different than the previous ones. On the CT scan report, the tumor is larger than before, but Dr. Flaherty thinks that the official measurements don't tell the whole story. Since all of the indicators of my health (i.e. energy, pain, sleep, appetite, blood work) have been improving, he feels that changing my treatment now based only on the liver CT results would be a knee jerk reaction. I agreed with him and elected to proceed with 2 additional chemo treatments.
My white blood cell count came back slightly low for the chemo protocol, but it was still high enough to adequately fight infections. This means that I will have to wait a week before getting my 3rd chemo infusion. Every day I realize more that this is going to be a long road for me. In a world that expects fast and quantifiable results, cancer doesn't fit. Faith and patience will be what gets me to the end of this road, wherever it leads.
Please keep me in your prayers for the chemo drugs to be effective over the next two treatments, that I'll avoid infections during this difficult time of the year, and that I'll keep hope and strength through this process. In addition, please keep Deb, the twins, and the rest of my family in your prayers. Cancer can be just as difficult for those close to it.
Thanks to everyone for your comments on my blog, as you have been sources of inspiration, joy, kindness, and love. It is comforting to know there are lots of people pulling for me.
I have adjusted my diet drastically before. Just after the twins were born I was my heaviest, 265lb on my 6'6" frame.
At that time I decided that I didn't want my kids to see me as an overweight father. I cut my caloric input by 1/2 and did weight training exercises 3 times a week. I lost 40lbs in about 6 months.
I have kept the weight off by eating less than I used to, but I haven't utilized the healthiest diet. I tend to eat lots of processed foods, red meats, and refined sugars. I switched to diet soda when I originally lost my weight which helped reduce my caloric intake, but it's certainly not the healthiest way to hydrate.
For the last 2 weeks, I have switched to a vegetable focussed nutrition plan that has a moderate amount of lean white meat (to get me the appropriate amount of protein). This nutrition plan provides loads of nutrients, vitamins, and enzymes that my body can process much more easily. I don't know if this diet will help my fight against cancer, but it certainly can't hurt eating a diet full of foods that are natural provided for us (Genesis 1:29). In addition, I drink about 100 oz of water a day.
Deb and I went to Karmanos yesterday for my 3rd scheduled chemo treatment. We first met with Dr. Flaherty to discuss the follow up CT scan taken the week before. The oncology field uses results from the CT scan in conjunction with other indicators such as blood work (each of the 100+ cancers is different, but for liver melanoma one blood indicator is LDH, an enzyme that can indicate liver disease). A normal LDH level is 250. At my first consult my LDH was 800. By my second treatment it had fallen to 300. On Friday the LDH was just under 200. We took this as encouraging news.
The CT scans were a mixed story. The mass in my left lung (not known if it is cancerous) has decreased in size by 60%. There is also no evidence of fluid in my lung. The liver CT scan was a different story. The new images looked significantly different than the previous ones. On the CT scan report, the tumor is larger than before, but Dr. Flaherty thinks that the official measurements don't tell the whole story. Since all of the indicators of my health (i.e. energy, pain, sleep, appetite, blood work) have been improving, he feels that changing my treatment now based only on the liver CT results would be a knee jerk reaction. I agreed with him and elected to proceed with 2 additional chemo treatments.
My white blood cell count came back slightly low for the chemo protocol, but it was still high enough to adequately fight infections. This means that I will have to wait a week before getting my 3rd chemo infusion. Every day I realize more that this is going to be a long road for me. In a world that expects fast and quantifiable results, cancer doesn't fit. Faith and patience will be what gets me to the end of this road, wherever it leads.
Please keep me in your prayers for the chemo drugs to be effective over the next two treatments, that I'll avoid infections during this difficult time of the year, and that I'll keep hope and strength through this process. In addition, please keep Deb, the twins, and the rest of my family in your prayers. Cancer can be just as difficult for those close to it.
Thanks to everyone for your comments on my blog, as you have been sources of inspiration, joy, kindness, and love. It is comforting to know there are lots of people pulling for me.
Friday, February 1, 2008
Cautious Optimism...
As I write this entry, I am getting my 2nd chemo treatment at Karmanos. Since some time has passed since my last entry, I won't get to the meaning of the entry title until the end...
After being on medical leave for almost 2 months, I returned to the office the previous Tuesday (22-Jan). I had been in contact with my boss and a number of colleagues during my time away from work, so it felt like much less than 2 months had passed since I last stepped into the building. My first day back went better than I expected, particularly since I didn't know how fatigued I would be over a full working day. Many of my colleagues were glad to see me back in the office, interested in knowing how I was doing, and offered words of encouragement for my "climb."
I had enough energy after my first day of work to practice with my band, Inline5. For those of you who have not seen us perform (i.e. most of you), we are 5 engineers in Ford Research that don't mind embarrassing ourselves in public (everyone has lead vocals on at least 1 song). All kidding aside, we have a lot of fun practicing weekly and performing a few times a year. I have been the drummer in the band for 18 months, on an instrument I hadn't played since the 9th grade. Fortunately drumming is like riding a bike; no matter how long you are away from it, you can pick it back up quickly.
I thank the Lord that my side effects from the treatment have been relatively minor. When I went back to work I had developed a rash on the back of both of my hands. At my Thursday doctor appointment we found that it MAY BE due to the clinical trial drug I am taking. One of the common side effects of the drug is dry and itching skin. My oncologist's assistant had seen similar looking rashes before. She recommended an appropriate moisturizing agent and the rash cleared up by the weekend. My blood work showed that the platelets (blot clotting component) were in the normal range but the white blood cell count was low and would have to come up before my next chemo treatment.
Every morning since my first chemo treatment I have looked at my pillow and tugged at my hair to see if it was falling out. On Wednesday (23-Jan), 12 days after my first treatment, I was able to pull strands out easily. In my case, my hair didn't just fall out at once, but by Friday my hair was thinning out rapidly. 10 minutes after returning home from work on Friday I put the clippers on the lowest setting and removed what was left of my hair. It is a little ironic that this hair(less)style was the one that Deb didn't want me to do (before I started treatments, of course). My mother, who tells it like it is, prefers the bald look.

Deb's mom came to visit over the weekend. On Saturday I woke up with some pain in my upper left back that felt like a muscle strain. Deep breathing was difficult since I had acute pain in my back. Fortunately it did not feel like there was fluid in my lung. Deb and her mom took the kids sledding in the morning and shopping in the afternoon. I took it easy on the couch.
On Sunday our pastor at Genesis preached on being under pressure (Acts 16:16-32). Paul and Silas were preaching in Philippi. A slave girl, who was a fortuneteller (and money maker for her owners), pestered Paul to the point where he commanded the evil spirit out of her. Her owners, upset since they no longer had their profitable business, roughed up Paul and Silas and riled up others against them in the market square. The judges took the side of the mob and ordered that Paul and Silas be stripped and severely lashed in public. After the beating they were put in a cell that was the most secure in the prison. Clearly Paul and Silas were under pressure, more pressure than most of us will ever face in our lifetime. Instead of groaning or complaining about their situation, Paul and Silas prayed and sang hymns, which shocked the other prisoners. An earthquake caused all of the cell doors to open, releasing all of the prisoners. The guard who was supposed to prevent Paul and Silas from escape feared what would happen to him and prepared to commit suicide. Paul stopped him and led him and his family to salvation. I understand that prayer and singing hymns won't necessarily save you from pressure in your life, but Paul and Silas didn't know that the doors would swing open either.
On Monday I was back at work for my second week, getting settled into my office, and making progress on assignments that had been on the backburner since I went into the hospital. My back pain had subsided by Thursday and my breathing returned to normal. I also resumed exercising this week, a brisk walk for 30 minutes each morning on the treadmill.
And that brings us to today and "cautious optimism"... Before I could get my second chemo infusion, my oncologist had to ensure that my blood work met the requirements of the protocol. My white cell count climbed back to normal over the past week. This means that my bone marrow is healthy, important for me fighting infection. In addition, the enzyme level associated with the activity of melanoma in my liver dropped when compared to my initial visit before starting treatment. These findings, in addition to how much better I have felt the last 2 weeks, are positive results. I'm not through the woods yet, closer to just entering the forest. We won't have another CT scan done until mid-February, but we were warned that the scans might not respond in the same manner as the blood work. It is a long road ahead, but I'm hoping days like this outnumber the alternative.
After being on medical leave for almost 2 months, I returned to the office the previous Tuesday (22-Jan). I had been in contact with my boss and a number of colleagues during my time away from work, so it felt like much less than 2 months had passed since I last stepped into the building. My first day back went better than I expected, particularly since I didn't know how fatigued I would be over a full working day. Many of my colleagues were glad to see me back in the office, interested in knowing how I was doing, and offered words of encouragement for my "climb."
I had enough energy after my first day of work to practice with my band, Inline5. For those of you who have not seen us perform (i.e. most of you), we are 5 engineers in Ford Research that don't mind embarrassing ourselves in public (everyone has lead vocals on at least 1 song). All kidding aside, we have a lot of fun practicing weekly and performing a few times a year. I have been the drummer in the band for 18 months, on an instrument I hadn't played since the 9th grade. Fortunately drumming is like riding a bike; no matter how long you are away from it, you can pick it back up quickly.
I thank the Lord that my side effects from the treatment have been relatively minor. When I went back to work I had developed a rash on the back of both of my hands. At my Thursday doctor appointment we found that it MAY BE due to the clinical trial drug I am taking. One of the common side effects of the drug is dry and itching skin. My oncologist's assistant had seen similar looking rashes before. She recommended an appropriate moisturizing agent and the rash cleared up by the weekend. My blood work showed that the platelets (blot clotting component) were in the normal range but the white blood cell count was low and would have to come up before my next chemo treatment.
Every morning since my first chemo treatment I have looked at my pillow and tugged at my hair to see if it was falling out. On Wednesday (23-Jan), 12 days after my first treatment, I was able to pull strands out easily. In my case, my hair didn't just fall out at once, but by Friday my hair was thinning out rapidly. 10 minutes after returning home from work on Friday I put the clippers on the lowest setting and removed what was left of my hair. It is a little ironic that this hair(less)style was the one that Deb didn't want me to do (before I started treatments, of course). My mother, who tells it like it is, prefers the bald look.

Deb's mom came to visit over the weekend. On Saturday I woke up with some pain in my upper left back that felt like a muscle strain. Deep breathing was difficult since I had acute pain in my back. Fortunately it did not feel like there was fluid in my lung. Deb and her mom took the kids sledding in the morning and shopping in the afternoon. I took it easy on the couch.
On Sunday our pastor at Genesis preached on being under pressure (Acts 16:16-32). Paul and Silas were preaching in Philippi. A slave girl, who was a fortuneteller (and money maker for her owners), pestered Paul to the point where he commanded the evil spirit out of her. Her owners, upset since they no longer had their profitable business, roughed up Paul and Silas and riled up others against them in the market square. The judges took the side of the mob and ordered that Paul and Silas be stripped and severely lashed in public. After the beating they were put in a cell that was the most secure in the prison. Clearly Paul and Silas were under pressure, more pressure than most of us will ever face in our lifetime. Instead of groaning or complaining about their situation, Paul and Silas prayed and sang hymns, which shocked the other prisoners. An earthquake caused all of the cell doors to open, releasing all of the prisoners. The guard who was supposed to prevent Paul and Silas from escape feared what would happen to him and prepared to commit suicide. Paul stopped him and led him and his family to salvation. I understand that prayer and singing hymns won't necessarily save you from pressure in your life, but Paul and Silas didn't know that the doors would swing open either.
On Monday I was back at work for my second week, getting settled into my office, and making progress on assignments that had been on the backburner since I went into the hospital. My back pain had subsided by Thursday and my breathing returned to normal. I also resumed exercising this week, a brisk walk for 30 minutes each morning on the treadmill.
And that brings us to today and "cautious optimism"... Before I could get my second chemo infusion, my oncologist had to ensure that my blood work met the requirements of the protocol. My white cell count climbed back to normal over the past week. This means that my bone marrow is healthy, important for me fighting infection. In addition, the enzyme level associated with the activity of melanoma in my liver dropped when compared to my initial visit before starting treatment. These findings, in addition to how much better I have felt the last 2 weeks, are positive results. I'm not through the woods yet, closer to just entering the forest. We won't have another CT scan done until mid-February, but we were warned that the scans might not respond in the same manner as the blood work. It is a long road ahead, but I'm hoping days like this outnumber the alternative.
Monday, January 21, 2008
First Week of Treatment
Everyone has different reactions to chemotherapy treatment; this past week was my chance to gauge how my body would respond to the drugs. In many respects I want life to return to normal, so I knew that this week would be a benchmark for what I could expect over the next few months of treatments.
On Monday morning I felt very similar to the previous weekend, no fluid in the lungs and overall feeling good. However, by Monday evening I started to feel aches in my joints and muscles. It felt like a case of the flu, minus the nausea. On Tuesday the joint and muscle aches had become more painful and my feet felt like they had fallen asleep. By Tuesday evening I couldn't stand for more than a minute or two, so I spent most of the day on the couch.
Deb and I went through the literature from Karmanos and found that my aches were a fairly common side effect, which normally starts 3 to 4 days after each chemo treatment (the steroid infusion from treatment day wears off by this time). The aches and pains normally subside in 1-2 days. On Wednesday the aches in my joints were gone, but I still had the tingling feeling in my feet.
Thursday morning Deb and I went downtown to Karmanos for a 1 week check up on my blood pressure and blood work. All of the results came back normal for the chemo treatment protocol. My white blood cell count is high enough to fight infections, but I will have to be diligent in keeping my hands washed and minimizing my exposure to people who are ill.
From the standpoint of pain, most patients on the daily 2400mg of Ibuprofen I take (equivalent to 12 over-the-counter pills) is effective against the post-treatment aches and pains. My doctor prescribed a stronger pain reliever for the next chemo treatment. We also found out that the Taxol chemo drug has a drying agent in it that helped clear up the fluid in my lung.
After returning home from the appointment on Thursday afternoon I decided that I would return to work on Tuesday (Jan 22nd). This is something I have looked forward to since being released from the hospital, as it will put some normality back into my daily routine. It has been good for me to rest and recover at home, but I believe I am strong enough to return to the office.
On Saturday morning Deb came down with a 24 hour flu bug that hit her really hard. I had a moment of panic as the twins had their first dentist appointment at 8:50am and I'm not the most proficient at getting the kids ready to go. Somehow I got Morgan and Landon to their appointment on time. They couldn't have done any better at their first check-up. Morgan kept telling the hygienist that "we brush our teeth so they won't fall out" and Landon wanted to get really close to all of the dental tools. They really liked the close up pictures of their teeth displayed on the monitor.
My parents, Meg, Em, and Steve visited over the weekend, as this was the AFC Championship weekend. We all cheered the Patriots onto a 21-12 victory over the Chargers. We'll do it all over again in 2 weeks for Super Bowl XLII.
Thanks to everyone who has posted comments on the blog, I really enjoy reading them and it gives me feedback that a lot of people are thinking about and praying for us. A number of you mentioned that you enjoyed the pictures I included in the previous blog entry, so here are a couple more from a recent sledding outing.



Morgan forges up the hill while Landon prefers to ride.

A free ride back to the car.
I feel blessed that my side effects thus far have been minor and that I'll be able to return life closer to normal. Please continue to pray that I'll stay free of infection, that the chemo drugs will be effective at killing my cancer, and that my strength and endurance will continue to increase.
On Monday morning I felt very similar to the previous weekend, no fluid in the lungs and overall feeling good. However, by Monday evening I started to feel aches in my joints and muscles. It felt like a case of the flu, minus the nausea. On Tuesday the joint and muscle aches had become more painful and my feet felt like they had fallen asleep. By Tuesday evening I couldn't stand for more than a minute or two, so I spent most of the day on the couch.
Deb and I went through the literature from Karmanos and found that my aches were a fairly common side effect, which normally starts 3 to 4 days after each chemo treatment (the steroid infusion from treatment day wears off by this time). The aches and pains normally subside in 1-2 days. On Wednesday the aches in my joints were gone, but I still had the tingling feeling in my feet.
Thursday morning Deb and I went downtown to Karmanos for a 1 week check up on my blood pressure and blood work. All of the results came back normal for the chemo treatment protocol. My white blood cell count is high enough to fight infections, but I will have to be diligent in keeping my hands washed and minimizing my exposure to people who are ill.
From the standpoint of pain, most patients on the daily 2400mg of Ibuprofen I take (equivalent to 12 over-the-counter pills) is effective against the post-treatment aches and pains. My doctor prescribed a stronger pain reliever for the next chemo treatment. We also found out that the Taxol chemo drug has a drying agent in it that helped clear up the fluid in my lung.
After returning home from the appointment on Thursday afternoon I decided that I would return to work on Tuesday (Jan 22nd). This is something I have looked forward to since being released from the hospital, as it will put some normality back into my daily routine. It has been good for me to rest and recover at home, but I believe I am strong enough to return to the office.
On Saturday morning Deb came down with a 24 hour flu bug that hit her really hard. I had a moment of panic as the twins had their first dentist appointment at 8:50am and I'm not the most proficient at getting the kids ready to go. Somehow I got Morgan and Landon to their appointment on time. They couldn't have done any better at their first check-up. Morgan kept telling the hygienist that "we brush our teeth so they won't fall out" and Landon wanted to get really close to all of the dental tools. They really liked the close up pictures of their teeth displayed on the monitor.
My parents, Meg, Em, and Steve visited over the weekend, as this was the AFC Championship weekend. We all cheered the Patriots onto a 21-12 victory over the Chargers. We'll do it all over again in 2 weeks for Super Bowl XLII.
Thanks to everyone who has posted comments on the blog, I really enjoy reading them and it gives me feedback that a lot of people are thinking about and praying for us. A number of you mentioned that you enjoyed the pictures I included in the previous blog entry, so here are a couple more from a recent sledding outing.
Morgan forges up the hill while Landon prefers to ride.
A free ride back to the car.
I feel blessed that my side effects thus far have been minor and that I'll be able to return life closer to normal. Please continue to pray that I'll stay free of infection, that the chemo drugs will be effective at killing my cancer, and that my strength and endurance will continue to increase.
Sunday, January 13, 2008
Starting My Climb Up the Mountain
They say that when dealing with cancer you'll go through peaks and valleys. This past week epitomized this experience.
Deb returned to work on Monday and the kids went back into daycare. Since they were off early in the morning (and I was still in bed), Morgan and Landon decided to come upstairs and give me a hug and kiss before they left. To my delight, they have made this part of every morning before leaving for school with Deb.
When I got up from bed on Monday, I felt an aching pain in my chest that was eerily similar to that before I was admitted to the hospital (although at a lower intensity and without the lower back pain). The last thing I wanted to have happen this week was to be re-admitted to the hospital to drain fluid from my chest, since this could impact my first chemo treatment scheduled for Friday.
When diagnosed with cancer, it is always in the back of your mind, but I have found that when I'm feeling well or when I have family/friends with me life is much more enjoyable. On Monday morning, I suddenly had neither of these positive influences. Then I noticed that I had a voicemail from my Dad that I missed from Sunday night, saying he wanted to come down and spend some time with me. It is amazing to me how the Lord recognizes and supplies our needs, before we even know we need them. Luke 1:49-50 (NIV)
49 for the Mighty One has done great things for me — holy is his name.
50 His mercy extends to those who fear him, from generation to generation.
Dad and I only spent about 3 hours together that afternoon, but in that short time we continued work in the kitchen (including the final fitments and hookups of the dishwasher) and had memorable conversations involving God, life, and family.
Late Monday afternoon, I had a follow up appointment with my pulmonary doctor. I had my early morning concerns about fluid build up in my left lung verified. Fortunately, the doctor didn't consider the amount of fluid necessary for immediate drainage, but he gave me the warning sign for when I should return to the hospital (shortness of breath at rest). At the time, his diagnostic tests showed my lungs at about 75% capacity of normal.
Sleep on Monday and Tuesday night was restless and alternating hot and cold sweats. My oncologist has said that this is a common occurrence with my form of cancer. On Wednesday, I experienced the chest pain again in the morning when getting out of bed, but I was feeling better once getting up and about.
I decided to install the last major piece of the kitchen remodel, the sink. Fortunately my friends and family had already assembled the plumbing, fixtures, and disposal, so all I needed to do was drop the sink into the square hole in the counter. After solving some minor fitting issues and putting down a bead of caulk, the sink was ready to go in. After all of the under-sink fasteners were secured, we finally had a functional kitchen. All that is left now is some minor trim work. Here are some pictures of the original to near finished project.

1950's original tile counter with painted cabinets

You can't find stuff like this anymore, unless you go to the Habitat Re-store in Detroit ;), where it is surely still sitting on a shelf.

Demo finished, beginning of prep (approximately 1 week before I went to the hospital)

The project near completion
My thanks goes out to all of you who helped us with this project (Derrick, Dan, Mike, John, Ben, Deb's Dad and Mom, Jim, Jorge, my Dad and Mom, Steve, Em, and anyone else I may have missed).
My Mom watched the kids Wednesday evening so Deb and I could meet with an estate planning lawyer. By the time we returned home, I was completely exhausted from the hour of driving and 2 hours of discussion. My temperature was running about 1 deg above normal. I had a difficult night, but for some reason I felt pretty good when I woke up.
Thursday was a milestone day for me. After 18 months with upper and lower braces, my dentist had them removed, giving me a mouth full of straight teeth. It was important to get this done before chemotherapy, fortunately the timing worked out perfectly. I'll be required to wear retainers most of the time the next 6 months as my teeth lock into their final position. It is funny to hear me talk with a lisp. In a few weeks I should be adjusted to the retainers in my mouth. On Thursday night Deb took the kids up to my parents for the weekend.
Friday was chemo day. We arrived at Karmanos around 7:30am, first stop being the lab for bloodwork. Unfortunately, there was a mix up with our paperwork and we waited 90 minutes before finding out that we had already missed our 8:40am appointment with Dr. Flaherty. Everything was eventually sorted out, but we were essentially running 1 hour behind schedule. My bloodwork came back OK for chemo treatment and we had a good discussion with Dr. Flaherty regarding the chemo and clinical trial drug treatment. My chemo drugs were Paclitaxel (often called Taxol) and Carboplatin (the nurses referred to it as Carbo). These chemo drugs are considered to be low on the toxicity scale, with side effects being relatively mild. The most common side effect of the clinical trial drug (BAY 43-9006) is dryness or a mild rash on the skin. Dr. Flaherty felt that the overall treatment would potentially reduce my lung fluid issue, as a very small tumor (smaller than can be detected on a CT scan) could be causing irritation resulting in fluid collection in my chest cavity.
We settled into our private chemo room at 12:30pm, and finally started the brigade of intravenous drugs at 1pm. The first 3 drugs (~60 minutes) were pre-chemo concoctions that included anti-nausea and steroid medications. Taxol was the first chemo treatment, which took 3.5 hours. Carbo was next, which took about 45 minutes. I didn't have any negative side effects to either of these drugs during the infusion. We finally exited Karmanos at 6:45pm, a long day but thankfully I was feeling well enough to drive us home.
Deb's mom arrived at our place late Friday night for a weekend visit. I slept well and felt just a slight amount of chest pain when getting up from bed (due to the fluid in the left lung). After taking my pill medications on Saturday morning, I felt like going out for breakfast. We stopped in at our local IHOP and found out that Doug Savant (one of the stars from Desperate Housewives and brother of the IHOP owner) would be at the restaurant from 1-4pm. Deb and her mom were quite excited and decided to return later to get a picture with Tom. I decided that I had enough of IHOP for one day ;).

On Sunday morning I got out of bed with no chest pain, which meant that most of the fluid in my chest was gone. My appetite has been great and I'm feeling energetic. I haven't experienced any of the negative side effects. I'm hoping that this will continue over the next few weeks as the drugs battle my cancer. Note that I'll probably lose what's left of my hair in the next 2 weeks ;).
Please continue to pray for my healing, specifically that I avoid infection due to my weakened immune system, that my lungs would stay clear of fluid, and that the chemo and clinical drugs would shrink my tumor.
Deb returned to work on Monday and the kids went back into daycare. Since they were off early in the morning (and I was still in bed), Morgan and Landon decided to come upstairs and give me a hug and kiss before they left. To my delight, they have made this part of every morning before leaving for school with Deb.
When I got up from bed on Monday, I felt an aching pain in my chest that was eerily similar to that before I was admitted to the hospital (although at a lower intensity and without the lower back pain). The last thing I wanted to have happen this week was to be re-admitted to the hospital to drain fluid from my chest, since this could impact my first chemo treatment scheduled for Friday.
When diagnosed with cancer, it is always in the back of your mind, but I have found that when I'm feeling well or when I have family/friends with me life is much more enjoyable. On Monday morning, I suddenly had neither of these positive influences. Then I noticed that I had a voicemail from my Dad that I missed from Sunday night, saying he wanted to come down and spend some time with me. It is amazing to me how the Lord recognizes and supplies our needs, before we even know we need them. Luke 1:49-50 (NIV)
49 for the Mighty One has done great things for me — holy is his name.
50 His mercy extends to those who fear him, from generation to generation.
Dad and I only spent about 3 hours together that afternoon, but in that short time we continued work in the kitchen (including the final fitments and hookups of the dishwasher) and had memorable conversations involving God, life, and family.
Late Monday afternoon, I had a follow up appointment with my pulmonary doctor. I had my early morning concerns about fluid build up in my left lung verified. Fortunately, the doctor didn't consider the amount of fluid necessary for immediate drainage, but he gave me the warning sign for when I should return to the hospital (shortness of breath at rest). At the time, his diagnostic tests showed my lungs at about 75% capacity of normal.
Sleep on Monday and Tuesday night was restless and alternating hot and cold sweats. My oncologist has said that this is a common occurrence with my form of cancer. On Wednesday, I experienced the chest pain again in the morning when getting out of bed, but I was feeling better once getting up and about.
I decided to install the last major piece of the kitchen remodel, the sink. Fortunately my friends and family had already assembled the plumbing, fixtures, and disposal, so all I needed to do was drop the sink into the square hole in the counter. After solving some minor fitting issues and putting down a bead of caulk, the sink was ready to go in. After all of the under-sink fasteners were secured, we finally had a functional kitchen. All that is left now is some minor trim work. Here are some pictures of the original to near finished project.
1950's original tile counter with painted cabinets
You can't find stuff like this anymore, unless you go to the Habitat Re-store in Detroit ;), where it is surely still sitting on a shelf.
Demo finished, beginning of prep (approximately 1 week before I went to the hospital)
The project near completion
My thanks goes out to all of you who helped us with this project (Derrick, Dan, Mike, John, Ben, Deb's Dad and Mom, Jim, Jorge, my Dad and Mom, Steve, Em, and anyone else I may have missed).
My Mom watched the kids Wednesday evening so Deb and I could meet with an estate planning lawyer. By the time we returned home, I was completely exhausted from the hour of driving and 2 hours of discussion. My temperature was running about 1 deg above normal. I had a difficult night, but for some reason I felt pretty good when I woke up.
Thursday was a milestone day for me. After 18 months with upper and lower braces, my dentist had them removed, giving me a mouth full of straight teeth. It was important to get this done before chemotherapy, fortunately the timing worked out perfectly. I'll be required to wear retainers most of the time the next 6 months as my teeth lock into their final position. It is funny to hear me talk with a lisp. In a few weeks I should be adjusted to the retainers in my mouth. On Thursday night Deb took the kids up to my parents for the weekend.
Friday was chemo day. We arrived at Karmanos around 7:30am, first stop being the lab for bloodwork. Unfortunately, there was a mix up with our paperwork and we waited 90 minutes before finding out that we had already missed our 8:40am appointment with Dr. Flaherty. Everything was eventually sorted out, but we were essentially running 1 hour behind schedule. My bloodwork came back OK for chemo treatment and we had a good discussion with Dr. Flaherty regarding the chemo and clinical trial drug treatment. My chemo drugs were Paclitaxel (often called Taxol) and Carboplatin (the nurses referred to it as Carbo). These chemo drugs are considered to be low on the toxicity scale, with side effects being relatively mild. The most common side effect of the clinical trial drug (BAY 43-9006) is dryness or a mild rash on the skin. Dr. Flaherty felt that the overall treatment would potentially reduce my lung fluid issue, as a very small tumor (smaller than can be detected on a CT scan) could be causing irritation resulting in fluid collection in my chest cavity.
We settled into our private chemo room at 12:30pm, and finally started the brigade of intravenous drugs at 1pm. The first 3 drugs (~60 minutes) were pre-chemo concoctions that included anti-nausea and steroid medications. Taxol was the first chemo treatment, which took 3.5 hours. Carbo was next, which took about 45 minutes. I didn't have any negative side effects to either of these drugs during the infusion. We finally exited Karmanos at 6:45pm, a long day but thankfully I was feeling well enough to drive us home.
Deb's mom arrived at our place late Friday night for a weekend visit. I slept well and felt just a slight amount of chest pain when getting up from bed (due to the fluid in the left lung). After taking my pill medications on Saturday morning, I felt like going out for breakfast. We stopped in at our local IHOP and found out that Doug Savant (one of the stars from Desperate Housewives and brother of the IHOP owner) would be at the restaurant from 1-4pm. Deb and her mom were quite excited and decided to return later to get a picture with Tom. I decided that I had enough of IHOP for one day ;).
On Sunday morning I got out of bed with no chest pain, which meant that most of the fluid in my chest was gone. My appetite has been great and I'm feeling energetic. I haven't experienced any of the negative side effects. I'm hoping that this will continue over the next few weeks as the drugs battle my cancer. Note that I'll probably lose what's left of my hair in the next 2 weeks ;).
Please continue to pray for my healing, specifically that I avoid infection due to my weakened immune system, that my lungs would stay clear of fluid, and that the chemo and clinical drugs would shrink my tumor.
Friday, January 4, 2008
Chemo Treatment Delayed...
I was scheduled to have my first chemotherapy treatment today, but I received information from Karmanos yesterday that my drugs for the clinical trial had not yet been delivered. Due to the holiday season, the drugs were delayed in getting here. I am now currently scheduled for my first chemo treatment on Friday, 11-Jan.
The clinical trial I am enrolled in is in phase 3. This clinical trial is a supplemental drug (taken daily) to the normal chemotherapy infusions every 21 days. Since this study (like all medical drug studies) is double blind, I will have a 50/50 chance of getting the clinical trial drug. The alternative is a placebo pill, which is an inactive look-alike. I won't know which pill I'm getting. My oncologist won't know which pill I'm getting.
My port has healed well over the last couple of days. We have all enjoyed being home as a family this week. Deb returns to teaching on Monday.
The clinical trial I am enrolled in is in phase 3. This clinical trial is a supplemental drug (taken daily) to the normal chemotherapy infusions every 21 days. Since this study (like all medical drug studies) is double blind, I will have a 50/50 chance of getting the clinical trial drug. The alternative is a placebo pill, which is an inactive look-alike. I won't know which pill I'm getting. My oncologist won't know which pill I'm getting.
My port has healed well over the last couple of days. We have all enjoyed being home as a family this week. Deb returns to teaching on Monday.
Tuesday, January 1, 2008
Merry Christmas and Happy New Year
The family went up to Port Huron on Christmas eve to spend time with my parents and siblings. When we left, we really didn't know how long we would spend there, as this was the first time I would be away from home since my diagnosis. Little things like how a bed feels different than a home can effect recovery.
Deb and I took the kids to the Christmas eve service at Grace Episcopal (where my dad is the priest). I grew up singing hymns in the church and have always found that I particularly enjoy those commonly used in the Christmas eve service. In the book "Tuesdays with Morrie" (author Mitch Albom), Morrie (who was homebound and dying from ALS) talked about how he appreciated things more in his condition. "I look out that window every day. I notice the change in the trees, how the wind is blowing. It's as if I can actually see time passing through the windowpane." (p.84) Although I wasn't in the same situation as Morrie, I identified with him. This was a Christmas eve service that I appreciated like none before.
Christmas day was wonderful, and as typical, relaxing with my family. We stretched our gift opening from mid-morning to early afternoon. Even the twins were patient as we opened our gifts, one person at a time. By the afternoon, Landon was content to spend the rest of the day playing with his Mack and McQueen Lego set, and Morgan hosted her own tea party.
We ended up staying with my parents until Friday evening, as being all together as a family aided my recovery every day. Taking deep breaths was becoming more comfortable and my stamina continued to increase. On Saturday, my parents, my brother Chuck and his wife Missy, and my brother Steve visited us at home. Being the Boston sports fans that were are, we watched the New England Patriots complete their perfect regular season in dramatic fashion. It seems so strange to be a Boston sports fan these days, as all of the failures and disappointments as recent as 10 years ago have been replaced by victory and championships. Boston teams that were once the lovable losers have now become despised.
Chuck and Missy set off for home (Charlotte) Sunday morning, while the rest of us attended the Sunday service at Genesis. A guest speaker, and former Genesis attender, spoke about God's Will for us, which I found particularly insightful. As you can imagine I have been frequently asking the Lord what His plan is for me.
Deb and I headed back to downtown Detroit on Monday. I was scheduled to have a port placement to facilitate the delivery of chemotherapy drugs. We arrived at Harper Hospital (connected to Karmanos) at 7:30am. After the usual blood samples and diagnostic tests, I was informed on the options for the port placement. I could either have the port placed on the inside of my arm next to the bicep or below my collarbone on my chest. I also had the option to either use local anesthetic or could be induced into sleep. I elected to have the port placed on my chest (right side), due to a slightly lower risk of blood clotting, and local anesthetic since I could walk out of the hospital after the procedure was complete (if induced into sleep, the hospital requires 2 hours of observation before discharge). The procedure lasted about 15 minutes, the only pain was from the administration of the local anesthetic, which felt like a needle being slowly plunged into your skin over about 30 seconds. After returning home, I spent most of the day resting on the couch. Needless to say, we didn't have an elaborate New Year's eve party at our place.
I was a bit sore when I woke up this morning, but as soon as I got up and around I felt much better. We had about 3 inches of snow fall over the evening. Our neighbor Ron kindly blew the snow off of our walk and driveway (thanks Ron). We also had a nice chat with his wife Carolyn, who is a cancer survivor. The snow, combined with the 32 deg F temperature, made for perfect snowman building conditions.

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Deb and I took the kids to the Christmas eve service at Grace Episcopal (where my dad is the priest). I grew up singing hymns in the church and have always found that I particularly enjoy those commonly used in the Christmas eve service. In the book "Tuesdays with Morrie" (author Mitch Albom), Morrie (who was homebound and dying from ALS) talked about how he appreciated things more in his condition. "I look out that window every day. I notice the change in the trees, how the wind is blowing. It's as if I can actually see time passing through the windowpane." (p.84) Although I wasn't in the same situation as Morrie, I identified with him. This was a Christmas eve service that I appreciated like none before.
Christmas day was wonderful, and as typical, relaxing with my family. We stretched our gift opening from mid-morning to early afternoon. Even the twins were patient as we opened our gifts, one person at a time. By the afternoon, Landon was content to spend the rest of the day playing with his Mack and McQueen Lego set, and Morgan hosted her own tea party.
We ended up staying with my parents until Friday evening, as being all together as a family aided my recovery every day. Taking deep breaths was becoming more comfortable and my stamina continued to increase. On Saturday, my parents, my brother Chuck and his wife Missy, and my brother Steve visited us at home. Being the Boston sports fans that were are, we watched the New England Patriots complete their perfect regular season in dramatic fashion. It seems so strange to be a Boston sports fan these days, as all of the failures and disappointments as recent as 10 years ago have been replaced by victory and championships. Boston teams that were once the lovable losers have now become despised.
Chuck and Missy set off for home (Charlotte) Sunday morning, while the rest of us attended the Sunday service at Genesis. A guest speaker, and former Genesis attender, spoke about God's Will for us, which I found particularly insightful. As you can imagine I have been frequently asking the Lord what His plan is for me.
Deb and I headed back to downtown Detroit on Monday. I was scheduled to have a port placement to facilitate the delivery of chemotherapy drugs. We arrived at Harper Hospital (connected to Karmanos) at 7:30am. After the usual blood samples and diagnostic tests, I was informed on the options for the port placement. I could either have the port placed on the inside of my arm next to the bicep or below my collarbone on my chest. I also had the option to either use local anesthetic or could be induced into sleep. I elected to have the port placed on my chest (right side), due to a slightly lower risk of blood clotting, and local anesthetic since I could walk out of the hospital after the procedure was complete (if induced into sleep, the hospital requires 2 hours of observation before discharge). The procedure lasted about 15 minutes, the only pain was from the administration of the local anesthetic, which felt like a needle being slowly plunged into your skin over about 30 seconds. After returning home, I spent most of the day resting on the couch. Needless to say, we didn't have an elaborate New Year's eve party at our place.
I was a bit sore when I woke up this morning, but as soon as I got up and around I felt much better. We had about 3 inches of snow fall over the evening. Our neighbor Ron kindly blew the snow off of our walk and driveway (thanks Ron). We also had a nice chat with his wife Carolyn, who is a cancer survivor. The snow, combined with the 32 deg F temperature, made for perfect snowman building conditions.

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